Digital Experts: Top Ten Guidelines On Death In A Digital World

Digital Experts: Top Ten Guidelines On Death In A Digital World

Digital Experts: Top Ten Guidelines On Death In A Digital World

Click here to view original web page at Digital Experts: Top Ten Guidelines On Death In A Digital World

Two digital experts, one focused on behavior and the other on technology and law, agree—it’s time for guidelines on digital death, from Directive Communication Systems.

Lee Poskanzer, Directive Communications Systems (DCS)
Lee Poskanzer, Directive Communications Systems (DCS)

“We are still in the Wild West of the digital age, so people don’t know that what they’re doing can be harmful. Well-meaning people don’t know they can innocently stir up emotions, cause others to lose financial and sentimental property and even encourage fraud. “

A mother is told to go to the hospital after learning that her son has been in a bad car crash. When she arrives, the waiting area is filled with somber high school students. They knew about the crash before she did.

Two digital experts, one focused on behavior and the other on technology and law, agree—it’s time for guidelines on digital death.

Lee Poskanzer, founder of Directive Communication Systems and Dr. Carla Sofka, Professor of Social Work at Siena College and co-editor of “Dying, Death and Grief in an Online Universe,” offer ten tips on grief and loss for the digital world:

1 – Think before you tweet, post or pin. If it’s not your spouse or partner, your parent or your child, a death is not your story to share. This is about privacy and personal ownership. Digital users expect to share news as it happens, but death notification is a private matter.

2 – Don’t sensationalize another person’s tragedy. Sharing grim details can be disturbing and painful. Images and recordings should not be posted without the express permission of the family.

3 – Find out what the family’s wishes are before posting anything. It’s important to know what the family wants to share and what they would prefer to keep out of the public eye.

4— Be alert for fraud and tell the family if you see something online that does not seem right. Death notices are often the starting point for identity theft. Keep an eye out for impersonation of the deceased in profile posts and report them to the authorities immediately.

5 – Don’t contact social media platforms about someone else’s death. Contacting websites’ Customer Service can create significant and irreversible problems. Data, photos, cryptocurrency and emails can be permanently locked out and/or destroyed when well-meaning individuals contact digital platforms.

6 – Don’t dismiss the positive use of social media. Digital users, particularly teens, turn to social media for immediate emotional support from their online communities. By connecting with others, they feel less isolated. Try to be understanding if someone’s style of grieving is more public than yours.

7 – Accept strangers who post respectfully—they are part of the grieving community. Dr. Sofka has coined the term “experiential empathy” to describe people who are strangers to a family or a community but connect with them online because they have a shared loss.

8– Be thoughtful when sharing your message of grief and support. Be authentic and sincere. A short message that will remind others of what the person meant to you will be appreciated.

9 – Acts of kindness are always welcome. IRL (In Real Life) or online, it’s hard to go wrong when you are showing support, sharing grief and memories.

10 – Take proactive steps to protect your own family and your own digital assets for the unexpected. Speak with family members about your own wishes, regardless of your age or health. Look into what is most effective for accomplishing your goals. Create a plan for managing your digital assets after your death, including how you want your family to share the news of your passing. Note that password sharing is a violation of the Terms of Service Agreement with website owners, and could result in the loss of digital assets, including photos, videos, emails, digital artifacts, cryptocurrency and more. Consider using 3rd party services and experts in digital asset directives management to handle these personal and private matters.

Directive Communication Systems (DCS) is the market- leading guardian of digital assets. We serve estate professionals and individuals planning their estates, loved ones left behind, fiduciaries and website owners. DCS is the only digital asset and directives service to meet requirements of federal and state laws and website Terms of Service Agreements. Visit us at http://www.directivecommunications.com, Linked In, Twitter @directivecomms.

Dr. Carla Sofka is a professor of social work at Siena College in Loudonville, NY. Prior to her academic career, Dr. Sofka was a clinical social worker who worked in geriatric, medical, psychiatric, and hospice settings. She writes and teaches about the impact of technology on how society learns about and copes with life-threatening illness, death, and grief. She is a frequent speaker at conferences and conducts workshops, webinars, and podcasts. In addition to contributions to numerous journal articles and book chapters, she is a past-president of the Association for Death Education and Counseling.

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Data protection and privacy in France

Data protection and privacy in France

Data protection and privacy in France

Click here to view original web page at Data protection and privacy in France

Law and the regulatory authority

Legislative framework

Summarise the legislative framework for the protection of personally identifiable information (PII). Does your jurisdiction have a dedicated data protection law? Is the data protection law in your jurisdiction based on any international instruments on privacy or data protection?

The legislative framework for the protection of PII in France is one of the oldest in Europe as it is based on the Law on Computer Technology and Freedom dated 6 January 1978 (Loi Informatique et Liberté, or LIL). This law has been amended several times since then, and especially by:

  • Law No. 2004-801 dated 6 August 2004 to implement the provisions of Directive 95/46/CE;
  • Law No. 2016-1321 dated 7 October 2016, which anticipates the implementation of certain provisions of the EU General Data Protection Regulation 2016/679 (GDPR);
  • Law No. 2018-493 of 20 June 2018 , which implements the GDPR in France and further amend the LIL;
  • Ordinance No. 2018-1125 of 12 December 2018 and Decree No. 2019-536 of 29 May 2019, which complete at the legislative level the compliance of the national law with the GDPR and redraft the LIL for a better readability and urderstanding of the law.

As a regulation, the GDPR has been directly effective in France since 25 May 2018.

Furthermore, the following international instruments on privacy and data protection also apply in France:

  • the Council of Europe Convention 108 on the Protection of Privacy and Trans-Border Flows of Personal Data;
  • the European Convention on Human Rights and Fundamental Freedoms (article 8 on the right to respect for private and family life); and
  • the Charter for Fundamental Rights of the European Union (article 7 on the right to respect for private and family life and article 8 on the right to the protection of personal data).

Data protection authority

Which authority is responsible for overseeing the data protection law? Describe the investigative powers of the authority.

The data protection authority in France is the National Commission for Data Protection and Liberties (CNIL). The CNIL is an independent public body entrusted with the following powers.

Powers of sanction

The maximum threshold of penalties that the CNIL can pronounce has been increased from €150,000 to €20 million or 4 per cent of world turnover for companies since the GDPR.

The CNIL can now compel sanctioned entities to inform each data subject individually of this sanction at their own expense.

It may also impose financial penalties without prior formal notification by the bodies where the failure to fulfil obligations cannot be brought into conformity.

It can also limit temporarily or definitively a specific processing.

Control and investigation powers

The CNIL is vested with investigation and control powers that allow its staff to have access to all professional premises and to request, on the spot, all necessary documents and to take a copy of any useful information. CNIL staff can also access any computer programs linked to the processing of PII and to recorded information. The CNIL can also conduct a documentary control where a letter accompanied by a questionnaire is sent to a PII controller and/or processor to assess the conformity of processing operations carried out by them or an online investigation, in particular by consulting data that are freely accessible or made directly accessible online, including under a fake identity.

In 2019, the CNIL will focus its supervisory action on three main themes, directly resulting from the entry into force of the GDPR:

  • respect of the rights of the data subjects;
  • the processing of minors’ data; and
  • the sharing of responsibilities between controllers and processors.

Regulatory powers

The powers of the CNIL have recently been extended, as it will have to be consulted for every bill or decree related to data protection and processing. Opinions will automatically be published.

The CNIL is also entrusted with the power to certify, approve and publish standards or general methodologies to certify the compliance of personal data anonymisation processes with the GDPR, notably for the reuse of public information available online.

Legal obligations of data protection authority

Are there legal obligations on the data protection authority to cooperate with data protection authorities, or is there a mechanism to resolve different approaches?

If the owner or processor of PII carries out cross-border processing either through multiple establishments in the EU or with only a single establishment, the supervisory authority for the main or single establishment acts as lead authority in respect of that cross-border processing.

As lead authority, the CNIL must cooperate with the data protection authorities in other member states where the owner or the processor is established, or where data subjects are substantially affected, or authorities to whom a complaint has been made. Specifically, the CNIL has to provide information to other data protection authorities and can seek mutual assistance from them and conduct joint investigations with them on their territories.

More generally, the CNIL is required to provide assistance to other data protection authorities in the form of information or carrying out ‘prior authorisations and consultations, inspections and investigations’. The European Commission can specify forms and procedures for mutual assistance. The CNIL could also participate in joint investigation and enforcement operations with other data protection authorities, particularly when a controller has an establishment on its territory or a significant number of its data subjects are likely to be substantially affected.

Breaches of data protection

Can breaches of data protection law lead to administrative sanctions or orders, or criminal penalties? How would such breaches be handled?

Failure to comply with data protection laws can result in complaints, data authority investigations and audits, administrative fines, penalties or sanctions, seizure of equipment or data, civil actions (including class actions that have been introduced by Law No. 2016-1547 dated 18 November 2016 for the Modernisation of the 21st Century Justice), criminal proceedings and private rights of action.

Proceedings

When the CNIL finds a PII owner to be in breach of its obligations under the LIL, as a preliminary step the CNIL chairman may issue a formal notice for the PII owner to remedy the breach within a limited period of time. In cases of extreme urgency, this period may be reduced to 24 hours.

When the breach cannot be remedied in the context of a formal notice, the CNIL may impose one of the following sanctions without prior formal notice of adversarial procedure:

  • a formal warning notification;
  • a financial penalty; or
  • the withdrawal of the authorisation to operate the data processing.

When the PII owner complies with the terms of the formal notice, the CNIL chairman shall declare the proceedings closed. Otherwise, the competent committee of CNIL may, after a contradictory procedure, pronounce one of the following penalties:

  • a warning notification;
  • a financial penalty, except when the PII owner is a public authority;
  • an injunction to cease treatment; or
  • the withdrawal of the authorisation granted by the CNIL for the data processing concerned.

In case of emergency and infringement to civil rights and freedoms, the CNIL may, after an adversarial procedure, take the following measures:

  • the suspension of the operation of data processing;
  • a formal warning;
  • the lockdown of PII for a maximum of three months (except for certain processing carried out on behalf of the French Administration); or
  • for certain sensitive files of the French Administration, the Prime Minister is given information in order for him to take the necessary measures to remedy the breaches.

In the event of a serious and immediate violation of rights and freedoms, the chairman of the CNIL may request, by summary application, the competent judge to order any necessary security measures.

The CNIL may also inform the public prosecutor that it has found infringements of data protection law that are criminally sanctionable.

Publicity of the penalties

The CNIL can make public the financial penalties that it pronounces. The inclusion of these sanctions in publications or newspapers is no longer subject to the condition of bad faith of the entity concerned.

Criminal sanctions

Infringements to data protection law may be punished by imprisonment for a maximum period of five years and a criminal fine up to €300,000 (articles 226-16 to 226-22-1 of the Criminal Code). However, criminal sanctions are hardly ever pronounced.

Scope

Exempt sectors and institutions

Does the data protection law cover all sectors and types of organisation or are some areas of activity outside its scope?

The LIL is generally applicable to all public bodies and all non-public entities that process PII and intends to cover all sectors. However, certain processing carried out by public authorities is subject to specific obligations that differ from the general obligations imposed upon private entities, for example:

  • processing of PII by public bodies for reasons of national security is subject to a specific regime supervised by the executive power; and
  • processing of PII managed by judicial authorities related to offences, convictions and security measures is subject to a specific regime supervised by the executive power.

The following categories of data processing fall outside the scope of the LIL:

  • processing of PII solely for journalistic or artistic purposes; and
  • processing of PII by a natural person in the course of a purely personal or household activity.

Communications, marketing and surveillance laws

Does the data protection law cover interception of communications, electronic marketing or monitoring and surveillance of individuals? If not, list other relevant laws in this regard.

The LIL does not cover the interception of communications nor surveillance of individuals when implemented for public interest purposes.

This is subject to the authority of a dedicated public authority, the National Commission for Monitoring Intelligence Techniques. This field is regulated by several laws, mainly Law No. 91-646 of 10 July 1991 and Law No. 2015-912 of 24 July 2015.

Electronic marketing is subject to the Postal and Electronic Communication Code (article L. 34-5 et seq) and to the Consumer Code (article L. 121-20-5 et seq).

Other laws

Identify any further laws or regulations that provide specific data protection rules for related areas.

Processing of health PII is subject to the provisions of the Public Health Code as well as to the LIL.

The solicitation by automatic calling machines, email or fax, and the sale or transfer of PII for prospecting purposes using these, is subject to the provisions of the Postal and Electronic Communications Code.

PII formats

What forms of PII are covered by the law?

The LIL is aimed at covering all forms of PII, which means any information relating to an individual who is identified or who could be directly or indirectly identified, by reference to an identification number or to the combination of one or several elements.

In addition, the LIL applies to automatic processing and to non-automatic processing of PII that forms part of a filing system (or is intended to form part of a filing system), with the exception of processing carried out for personal purposes. Accordingly, even records of PII in paper form may be subject to the LIL.

Extraterritoriality

Is the reach of the law limited to PII owners and processors of PII established or operating in the jurisdiction?

The LIL applies to processing of PII carried out by a PII owner:

  • who is established in France, whether or not the processing takes place in France. In this context, ‘establishment’ is broadly interpreted as it refers to all sorts of ‘installation’, regardless of its legal form; or
  • who is not established in France, but who uses a means of processing located in French territory, for instance, hosting data, internet service provider, cloud services, among others.

Covered uses of PII

Is all processing or use of PII covered? Is a distinction made between those who control or own PII and those who provide PII processing services to owners? Do owners’, controllers’ and processors’ duties differ?

In principle, the LIL applies to all processing of PII, with the exception of that carried out for purely personal purposes. The controller determines the purposes for which and the means by which PII is processed, whereas the processor processes PII only on behalf of the controller. The duties of the processor towards the controller must be specified in a contract or another legal act.

In principle, the PII controller is the principal party for responsibilities such as collecting consent, enabling the right to access or managing consent-revoking. However, the GDPR introduces direct obligations for PII processors (including security, international transfers, record keeping, etc) and thus they can be held directly liable by data protection authorities for breaches of the GDPR and the LIL.

Controllers and processors are also jointly and severally liable where they are both responsible for damage caused by a breach.

Legitimate processing of PII

Legitimate processing – grounds

Does the law require that the holding of PII be legitimised on specific grounds, for example to meet the owner’s legal obligations or if the individual has provided consent?

Every collection, processing or use of PII needs to be justified under French data protection law. In principle, the ground for legitimate processing must be the consent of the data subject, but the LIL introduced statutory legal exemptions to obtain the consent of the data subject for some processing when it is carried out for the following purposes:

  • the respect of a legal obligation of the data controller;
  • the protection of the data subject’s life (interpreted restrictively);
  • the performance of a public service mission entrusted to the data controller or the data recipient;
  • the performance of either a contract to which the data subject is a party or steps taken at the request of the data subject prior to entering a contract; or
  • the pursuit of the data controller’s or the data recipient’s legitimate interest provided such interest is not incompatible with the fundamental rights and interests of the data subject.

Legitimate processing – types of PII

Does the law impose more stringent rules for specific types of PII?

French law is more restrictive for the processing of specific types of PII, known as sensitive personal data. As a matter of principle, processing of sensitive data is prohibited.

The LIL provides a non-exhaustive list of sensitive PII by nature, which is PII that reveals, directly or indirectly, the racial and ethnic origins, the political, philosophical, religious opinions or trade union affiliation of individuals, or that concerns their health or sexual life. This category of sensitive data by nature can only be processed in the following cases, among others:

  • the data subject gave prior express consent;
  • the processing is necessary to protect the vital interests of the data subject or of another person, where the data subject is physically or legally incapable of giving his or her consent;
  • the processing is carried out by a foundation, association or any other non-profit organisation with political, philosophical, religious or trade union objectives, in the course of its legitimate activities;
  • the processing relates to PII that has been made public by the data subject; or
  • the processing is necessary for the establishment, exercise or defence of legal claims.

In relation to the use of PII in the employment context, the CNIL published several opinions on monitoring the activities of employees, video surveillance, discrimination, localisation data and collection of PII in the recruitment process. Moreover, in France, employers cannot rely on consent for processing involving PII of its employees, since the employees cannot freely consent as they are by nature subordinated to the employer.

Moreover, processing can be prohibited due to its context, such as the processing of PII relating to offences, convictions and security measures, which can only be carried out by a limited number of specific entities.

Furthermore, according to the law on the protection of personal data, a minor may consent to the processing of personal data alone with regard to the offer of information society services from the age of 15, which differs from the threshold of 16 years provided in the GDPR.

The law on the protection of personal data establishes a principle of prohibition of decisions producing legal effects on the sole basis of automated processing, including profiling intended to define the profile of the person concerned or to evaluate certain aspects of his or her personality. Such a provision maintains a certain gap with the GDPR, since the law is based on a prohibition in principle of such automated processing while the GDPR refers to an ‘individual right’ of the person concerned ‘not to be the subject of a decision based solely on automated processing, including profiling’.

Data handling responsibilities of owners of PII

Notification

Does the law require owners of PII to notify individuals whose PII they hold? What must the notice contain and when must it be provided?

As a general rule, data subjects shall be provided with the following information when their PII is collected:

  • the identity of the data controller;
  • contact details for the data protection officer, where applicable;
  • the purposes and the legal basis of the processing;
  • the category of personal data;
  • when PII is collected via a questionnaire, whether replies to the question are compulsory or optional;
  • the consequences of an absence of reply;
  • the categories of recipients of the data;
  • information on the data subject’s rights and the method to be used to exercise them (ie, the right to access the collected PII and to rectify, complete, update, block or delete it if inaccurate, incomplete, equivocal or expired; and the right to direct the use of their PII after their death);
  • the intended transfer of PII outside the EEA;
  • the storage duration or the criteria that will be used to determine the duration;
  • the right to lodge a complaint with a supervisory authority; and
  • the existence of automated decision-making, including profiling and, if applicable, meaningful information about the logic used and the significance and envisaged consequences of such processing for the data subject.

Where the data was not obtained from the data subject, the information must be provided at the time of recording of the personal data or, if disclosure to a third party is planned, no later than at the time the data is disclosed for the first time.

Exemption from notification

When is notice not required?

Notice is not required if the data subject already received such information. Furthermore, in cases where the data subject did not provide his or her PII directly, the data controller is exempted from the notification obligation if:

  • informing the data subject proves impossible or would involve a disproportionate effort, in particular in the context of statistical, historical or scientific research, or for the purpose of medical examination of the population with a view to protecting and promoting public health;
  • the data subject already has the information;
  • the PII is recorded only to comply with statutory and legal obligations; or
  • the PII must remain confidential subject to an obligation of professional secrecy regulated by EU or member state law, including a statutory obligation of secrecy.

Control of use

Must owners of PII offer individuals any degree of choice or control over the use of their information? In which circumstances?

The LIL grants rights to data subjects allowing them to have some control over the use of their PII. The relevant rights in this field are notably the right to rectify inaccurate or out-of-date PII, and the right to be forgotten, in order to obtain the deletion of such PII (see question 38).

Data accuracy

Does the law impose standards in relation to the quality, currency and accuracy of PII?

As a general rule, the PII controller shall ensure that the processed PII is adequate, relevant and not excessive in relation to the purposes for which it is collected and for onward processing. In addition, the PII owner shall also ensure that PII is accurate, complete and, if necessary, updated. In this respect, the law provides that the PII owner shall take appropriate measures to ensure that inaccurate or incomplete data for the purposes for which it is collected or processed is erased or rectified.

Amount and duration of data holding

Does the law restrict the amount of PII that may be held or the length of time it may be held?

PII owners are required to limit the processing of PII to what is strictly necessary for the purpose of the processing. The amount of PII collected and processed must be proportionate to the purposes of the processing.

The LIL also provides that the PII must only be kept in a form enabling the data subject to be identified for a period that does not exceed the time necessary for the purposes for which the PII is collected and processed. Accordingly, if the legitimate ground of the processing has disappeared or expired, the controller should erase, anonymise or pseudonymise the PII.

Finality principle

Are the purposes for which PII can be used by owners restricted? Has the ‘finality principle’ been adopted?

The finality principle is a core principle of data protection regulation in France. PII can only be collected for specified, explicit and legitimate purposes and must not be further processed in a way incompatible with those purposes.

Furthermore, the CNIL already encourages PII controllers to implement the ‘data minimisation’ principle (which is consecrated in the GDPR), as well as the systematic use, where applicable, of anonymisation and pseudonymisation techniques.

Use for new purposes

If the finality principle has been adopted, how far does the law allow for PII to be used for new purposes? Are there exceptions or exclusions from the finality principle?

PII can be processed for new purposes provided that such onward processing is not incompatible with the initial purposes for which the PII was collected and subject to the data subject’s rights and the principle of data minimisation.

Processing of PII for new purposes when such purposes are statistical, historical or medical research is generally considered as compatible with the initial purpose.

Processing of PII for new purposes even incompatible with the initial purpose is also possible with the prior consent of the data subject.

Security

Security obligations

What security obligations are imposed on PII owners and service providers that process PII on their behalf?

Data controllers must protect PII against accidental or unlawful destruction, loss, alteration and disclosure, particularly when processing involves data transmission over networks.

Data controllers are required to take steps to:

  • ensure that PII in their possession and control is protected from unauthorised access and use;
  • implement appropriate physical, technical and organisational security safeguards to protect PII; and
  • ensure that the level of security is appropriate with the amount, nature and sensitivity of the PII.

The CNIL issued guidelines on 23 January 2018 on the security measures to be implemented by data controllers, in line with the requirement of the GDPR, to guarantee the security of personal data processing. These guidelines encourage data controllers to perform a privacy impact assessment, which shall be carried out in consideration of the two following pillars:

  • the principles and fundamental rights identified as ‘not negotiable’, which are set by law and must be respected. They shall not be subject to any modulation, irrespective of the nature, seriousness or likelihood of the risks incurred; and
  • the management of risks on data subjects that allows data controllers to determine which appropriate technical and organisational measures shall be taken to protect the PII.

Notification of data breach

Does the law include (general or sector-specific) obligations to notify the supervisory authority or individuals of data breaches? If breach notification is not required by law, is it recommended by the supervisory authority?

With the GDPR, there is a general obligation for PII controllers to report PII data breaches to the CNIL without undue delay and, where feasible, not later than 72 hours after becoming aware of it. However, an exception to this notification exists when the data breach is unlikely to result in a risk to the rights and freedoms of natural persons. Where the notification is not made within 72 hours, reasons will have to be provided to the supervisory authority.

The notification shall at least:

  • describe the nature of the personal data breach, including, where possible, the categories and approximate number of data subjects concerned, and the categories and approximate number of personal data records concerned;
  • communicate the name and contact details of the data protection officer or other contact point where more information can be obtained;
  • describe the likely consequences of the personal data breach; and
  • describe the measures taken or proposed to be taken by the owner to address the personal data breach, including, where appropriate, measures to mitigate its possible adverse effects.

Moreover, when the data breach is likely to result in a high risk to the rights and freedoms of data subjects, the controller shall notify the data breach to the data subject without undue delay. This notification can be waived if the CNIL considers that:

  • the controller has taken subsequent measures that ensure the high risk to the rights and freedoms of data subjects is no longer likely to materialise;
  • appropriate technical and organisational protection was in place at the time of the incident (eg, encrypted data); or
  • the notification would trigger disproportionate efforts (instead a public information campaign or ‘similar measures’ should be relied on so that affected data subjects can be effectively informed).

The PII owner must keep an updated record of all PII breaches, which must contain the list of conditions, effects and measures taken as remedies. This record must be communicated to the CNIL on request.

Failure to meet the above requirements exposes the owners of PII to an administrative fine of up to €10,000,000 or, in case of an undertaking, up to 2 per cent of the total worldwide annual turnover of the preceding financial year, whichever is higher.

Providers of electronic communication services are also subject to an obligation to notify the CNIL within 24 hours in the event of a PII breach. In this respect, when the PII breach may affect PII or the privacy of a data subject, the PII controller shall also notify the concerned data subject without delay.

Internal controls

Data protection officer

Is the appointment of a data protection officer mandatory? What are the data protection officer’s legal responsibilities?

Controllers and processors may decide to appoint a data protection officer (DPO). However, this is mandatory for public sector bodies, those involved in certain listed sensitive processing or monitoring activities or where local law requires an appointment to be made.

The DPO assists the owner or the processor in all issues relating to the protection of the PII. In a nutshell, the DPO must:

  • monitor compliance of the organisation with all regulations regarding data protection, including audits, awareness-raising activities and training of staff involved in processing operations;
  • advise and inform the owner or processor, as well as their employees, of their obligations under data protection regulations;
  • act as a contact point for requests from individuals regarding the processing of their personal data and the exercise of their rights; and
  • cooperate with the data protection authorities (DPAs) and act as a contact point for DPAs on issues relating to processing.

Record keeping

Are owners or processors of PII required to maintain any internal records or establish internal processes or documentation?

PII controllers are required to maintain a record of processing activities under their responsibilities as referred to in article 30 of the GDPR. Processors of PII are also required to maintain such a record about personal data that controllers engage them to process.

While an exemption from the above obligations applies to organisations employing fewer than 250 people, this exemption will not apply where sensitive data is processed and where owners or processors of PII find themselves in the position of:

  • carrying out processing likely to result in a risk (not just a high risk) to the rights of the data subjects;
  • processing personal data on a non-occasional basis; or
  • processing sensitive data or data relating to criminal convictions.

New processing regulations

Are there any obligations in relation to new processing operations?

Since the GDPR is directly effective in France, controllers and processors of PII are required to apply a privacy-by-design approach by implementing technical and organisational measures to show that they have considered and integrated data compliance measures into their data-processing activities. These technical and organisational measures might include the use of pseudonymisation techniques, staff training programmes and specific policies and procedures.

In addition, when processing is likely to result in a high risk to the rights and freedoms of natural persons, owners and controllers are required to carry out a detailed privacy impact assessment (PIA). Where a PIA results in the conclusion that there is indeed a high, and unmitigated, risk for the data subjects, controllers must notify the supervisory authority and obtain its view on the adequacy of the measures proposed by the PIA to reduce the risks of processing.

Controllers and processors may decide to appoint a DPO (see question 22).

Registration and notification

Registration

Are PII owners or processors of PII required to register with the supervisory authority? Are there any exemptions?

PII controllers or processors are not required to register with the CNIL.

Since the entry into force of the GDPR, owners and processors no longer have the obligation to declare the PII processing they carry out to the CNIL.

However, the law on personal data maintains the requirement of a prior authorisation from the CNIL for the following processing:

  • of biometric or genetic data by the state;
  • for research, study or evaluation in the field of health.

Formalities

What are the formalities for registration?

The formalities of registration for data processing requiring prior authorisation must be performed for each new PII processing operation.

The formalities are free of charge and can be realised on the CNIL’s website and are non-renewable since they remain valid for the whole duration of the processing. The following information must be provided:

  • the identity and the address of the data controller;
  • the purposes of the processing and the general description of its functions;
  • if necessary, the combinations, alignments or any other form of relation with other processing;
  • the PII processed, its origin and the categories of data subjects to which the processing relates;
  • the period of retention of the processed information;
  • the department responsible for carrying out the processing;
  • the authorised recipients to whom the data may be disclosed;
  • the function of the person where the right of access is exercised, as well as the measures relating to the exercise of this right;
  • the steps taken to ensure the security of the processing and data, the safeguarding of secrets protected by law and, if necessary, information on recourse to a sub-contractor; and
  • if applicable, any transfer of PII that is envisaged outside of the EEA.

Penalties

What are the penalties for a PII owner or processor of PII for failure to make or maintain an entry on the register?

Failure to comply with the registration obligation can be punished by imprisonment for a maximum period of five years and a criminal fine of up to €300,000 (article 226-16 and 226-16-1 A of the Criminal Code).

Refusal of registration

On what grounds may the supervisory authority refuse to allow an entry on the register?

The CNIL can refuse its registration if some of the information to be provided is missing or if the PII collected for the processing is too broad in relation to its purpose. In such cases, the PII owner cannot carry out the intended data processing. Failure to comply with a refusal of the CNIL to authorise processing is subject to criminal sanctions (see question 27).

Public access

Is the register publicly available? How can it be accessed?

On 30 August 2017, the CNIL published on its website a register that lists the formalities completed since 1979 by data controllers (public and private). This register can be consulted freely, with ease, via the CNIL website.

Effect of registration

Does an entry on the register have any specific legal effect?

The PII controller may only be allowed to start carrying out the processing upon registration and receipt of authorisation from the CNIL.

The registration as such does not exempt a data controller from any of its other obligations. After the registration, data controllers still need to ensure that the processing complies with the information disclosed in the notification and with data protection standards.

Other transparency duties

Are there any other public transparency duties?

Not to our knowledge.

Transfer and disclosure of PII

Transfer of PII

How does the law regulate the transfer of PII to entities that provide outsourced processing services?

Under the LIL regime, any person that processes PII on behalf of the data controller is regarded as a processor. The processor may only process PII under the data controller’s instructions.

When a data controller outsources some of its processing or transfers PII in relation with such processing to a sub-contractor (ie, a data processor), it must establish an agreement with that processor.

This agreement shall specify the obligations incumbent upon the processor as regards the obligation of protection of the security and confidentiality of the data and provide that the processor may act only upon the instruction of the data controller.

Restrictions on disclosure

Describe any specific restrictions on the disclosure of PII to other recipients.

Generally, there are no specific restrictions on the disclosure of PII other than the general data protection principles provided by the LIL.

Nevertheless, disclosure of sensitive PII such as health data is limited to certain institutions and professionals, unless the data controller has obtained a specific and express consent of the data subject for the disclosure of such PII.

Cross-border transfer

Is the transfer of PII outside the jurisdiction restricted?

PII can be transferred freely to other countries within the EEA, as well as to countries recognised by the European Commission as providing an ‘adequate level of data protection’.

Such transfers of PII from France are permitted to Canada (under certain conditions), Switzerland, Argentina, Guernsey, the Isle of Man, Jersey, the Faroe Islands, Andorra, Israel, Uruguay and New Zealand.

Furthermore, transfers of PII from France to recipients established in the US are permitted to the extent that they are registered under the Privacy Shield certification.

Moreover, a controller or processor may transfer PII to other countries, or to recipients in the United States who have not chosen to sign up to the Privacy Shield, only if the controller or processor has provided appropriate safeguards, and on condition that enforceable data subject rights and effective legal remedies for data subjects are available.

The appropriate safeguards may be provided for by:

  • a legally binding and enforceable instrument between public authorities or bodies;
  • binding corporate rules approved by the CNIL;
  • standard data protection clauses – model clauses designed by the European Commission to facilitate transfers of personal data from the EU to all third countries, while providing sufficient safeguards for the protection of individuals’ privacy; or
  • a code of conduct approved by the CNIL, together with binding and enforceable commitments of the controller or processor in the third country to apply the appropriate safeguards, including as regards data subjects’ rights; or
  • a certification mechanism approved by the CNIL together with binding and enforceable commitments of the controller or processor in the third country to apply the appropriate safeguards, including as regards data subjects’ rights.

Subject to the authorisation from the CNIL, the appropriate safeguards may also be provided for, in particular, by:

  • contractual clauses between the controller or processor and the controller, processor or the recipient of the personal data in the third country or international organisation; or
  • provisions to be inserted into administrative arrangements between public authorities or bodies which include enforceable and effective data subject rights.

However, in the absence of an adequacy decision or of appropriate safeguards as descried above, a transfer of personal data to a third country or an international organisation shall take place if:

  • the data subject has explicitly consented to its transfer after having been informed of the possible risks of such transfers due to the absence of an adequacy decision and appropriate safeguards; or
  • the transfer is necessary under one of the following conditions:
    • protection of the data subject’s life;
    • protection of the public interest;
    • to meet obligations ensuring the establishment, exercise or defence of legal claims;
    • consultation of a public register that is intended for public information and is open for public consultation or by any person demonstrating a legitimate interest;
    • performance of a contract between the data controller and the data subject, or of pre-contractual measures taken in response to the data subject’s request; or
    • conclusion or performance of a contract, either concluded or to be concluded in the interest of the data subject between the data controller and a third party.

Data controllers must inform data subjects of the data transfer and provide the following information:

  • the country where the recipient of the data is established;
  • the nature of the data transferred;
  • the purpose of the transfer;
  • categories of the recipients; and
  • the level of protection of the state concerned or adopted alternative measures.

Notification of cross-border transfer

Does cross-border transfer of PII require notification to or authorisation from a supervisory authority?

The cross-border transfer must be approved by the CNIL when it is based on:

  • contractual clauses concluded between the controller or processor and the controller, processor or the recipient of the personal data in the third country or international organisation; or
  • provisions inserted into administrative arrangements between public authorities or public bodies which include enforceable and effective data subject rights.

Further transfer

If transfers outside the jurisdiction are subject to restriction or authorisation, do these apply equally to transfers to service providers and onwards transfers?

Restrictions on cross-border transfers apply to transfers from the PII owner based in France to a data processor outside of the EEA. Onward transfers are in principle subject to the restrictions in force in the recipient’s jurisdiction. By exception, SCCs contain specific requirements for onward transfers.

Rights of individuals

Access

Do individuals have the right to access their personal information held by PII owners? Describe how this right can be exercised as well as any limitations to this right.

Data subjects have a right to ‘access’ the PII that a controller holds about them.

Data subjects can exercise their right of access by sending a signed and dated access request, together with proof of identity. Data subjects can request that the PII owner provides the following information:

  • confirmation as to whether the controller processes the data subject’s PII;
  • information related to the purposes for which the PII is processed, and the recipients or categories of recipients to whom the PII is or has been provided;
  • where applicable, information related to cross-border data transfers;
  • the logic involved in any automated decision making (if any);
  • the communication, in an accessible form, of personal data concerning the data subject as well as any information available as to the origin of the data; and
  • information allowing the data subject to know and to contest the logic underlying the automated processing in the event of a decision taken on the basis of it and producing legal effects with regard to the person concerned.

The controller may oppose manifestly abusive access requests, in particular with respect to their excessive number or repetitive or systematic nature. In the event of a claim from the data subject, the burden of proving the manifestly abusive nature of the requests lies with the PII owner to whom they are addressed.

The right of access may be denied when the personal data is kept in a form that excludes any risk of invasion of the privacy of the data subjects (ie, if PII is pseudonymised or anonymised) and for a period not exceeding what is necessary for the sole purpose of statistical, scientific or historical research.

Other rights

Do individuals have other substantive rights?

In addition to the right of access described above, data subjects are granted the rights described below. When PII has been collected by electronic means, the data subjects must be provided with a way to exercise their rights using electronic means.

Right to object

Data subjects have the right to object to the processing of their PII on legitimate grounds, unless the processing is necessary for compliance with a legal obligation or when the act authorising the processing expressly excludes the data subjects’ right to object.

Data subjects also have the right to object, at no fee and without justification, to the use of PII related to them for the purposes of direct marketing by the PII owner or by an onward data controller.

Right to correct

Upon proof of their identity, data subjects may require the PII owner to correct, supplement, update, lock or erase personal data related to them that is inaccurate, incomplete, equivocal or out of date, or whose collection, use, disclosure or storage is prohibited.

When the concerned PII has been transmitted to a third party, the data controller must carry out the necessary diligence to notify such third party of the modifications operated in accordance with the data subjects’ request.

Right to be forgotten

Data subjects have the right to request the PII controller to erase personal data concerning him or her without undue delay and the controller shall have the obligation to erase personal data without undue delay, in particular where one of the following grounds applies:

  • the PII is no longer necessary in relation to the purposes for which it was collected or otherwise processed;
  • the data subject withdraws consent on which the processing is based, and where there is no other legal ground for the processing;
  • the PII has been unlawfully processed;
  • the PII has to be erased for compliance with a legal obligation in EU or member state law to which the controller is subject; or
  • the PII has been collected in relation to the offer of information society services.

Right to be forgotten for children

Data subjects have the right to request the PII controller to erase without undue delay the personal data that has been collected in the context of the provision of information society services where the data subject was under age at the time of collection. When the PII controller has transmitted the concerned data to another PII owner, the data controller shall take reasonable measures, including technical measures, to inform the onward PII owner of the data subject’s request for the deletion of any link to the data, or any copy or reproduction thereof.

This is unless the data processing is necessary:

  • to exercise the right to freedom of expression and information;
  • to comply with a legal obligation requiring the processing of such data or to carry out a task in the public interest or in the exercise of the public authority entrusted to the controller;
  • to public health;
  • to archival purposes of public interest, for scientific or historical research or for statistical purposes; or
  • to establish or exercise legal rights.

Right of data portability

Data subjects have a right to:

  • receive a copy of their personal data in a structured, commonly used, machine-readable format that supports re-use;
  • transfer their personal data from one controller to another;
  • store their personal data for further personal use on a private device; and
  • have their personal data transmitted directly between controllers without hindrance.

‘Digital death’

Data subjects have the right to set guidelines for the retention, deletion and communication of their personal data after their death.

Compensation

Are individuals entitled to monetary damages or compensation if they are affected by breaches of the law? Is actual damage required or is injury to feelings sufficient?

Individuals may claim for damages when they are affected by a breach of the LIL that qualifies as a criminal offence subject to the referral to criminal jurisdiction.

In this case, compensation may amount to the total amount of damage endured by the individual, which includes moral damages or injury to feelings.

Enforcement

Are these rights exercisable through the judicial system or enforced by the supervisory authority or both?

Where the data controller does not answer or refuses to grant the right to the data subjects’ request, the latter can refer to the CNIL or a judge to obtain interim measures against the data controller.

Exemptions, derogations and restrictions

Further exemptions and restrictions

Does the law include any derogations, exclusions or limitations other than those already described? Describe the relevant provisions.

Not applicable.

Supervision

Judicial review

Can PII owners appeal against orders of the supervisory authority to the courts?

PII owners can appeal against orders or sanctions pronounced by the CNIL in front of the Supreme Court for the administrative order (the Council of State).

Specific data processing

Internet use

Describe any rules on the use of ‘cookies’ or equivalent technology.

Data controllers may install cookies or equivalent devices subject to the data subject’s prior consent. Such consent may derive from the browser or other application settings. The following categories of cookies require the prior consent of the data subject:

  • cookies related to targeted advertising;
  • social networks’ cookies generated in particular by their buttons of sharing when collecting personal data without the consent of the persons concerned; and
  • analytics cookies.

As regards analytics, the CNIL considers that these cookies may be exempted from prior consent subject to the following:

  • information must be given to users who must be able to oppose processing (this opposition must be possible from any terminal);
  • the data collected must not be cross-checked with other processing (client files or statistics of attendance of other sites, for example);
  • the cookies must be used only for the purpose of anonymous statistics and should not allow the tracking of navigation on different sites;
  • raw attendance data associating an identifier must also not be retained for more than 13 months; and
  • the use of an IP address to geolocate the user should not allow the street to be determined: only the first two bytes of the IPv4 addresses can be preserved and possibly used for delocalisation (for IPv6 only the first six bytes can be retained).

Implied consent is now accepted and companies must implement a two-step approach for obtaining consent.

Data controllers must use a banner providing the following information to the website user:

  • purposes of the cookies;
  • the possibility to object to the use of cookies and to modify settings by clicking on a link (made available in the cookie banner). Such link must describe the operations to be carried out by the data subject to disable the cookies;
  • that further navigation on the website constitutes valid consent to the storage of cookies on their device; and
  • an explanation of how disabling cookies might affect the data subject’s use of the website or app.

The CNIL recommends that to ensure that the data subject’s consent is unambiguous, the banner shall not disappear until the individual continues to navigate on the website, for example, by clicking on an element of the website or navigating to another page of the website.

The CNIL considers that the consent given by the data subject is only valid for 13 months. After this period, the consent of data subjects shall be collected again with the same conditions. Accordingly, the cookies’ lifetime shall be limited to 13 months from the date of the first deposit on the user’s device. New visits of the user to the website shall not automatically extend the cookies’ lifespan.

In addition, data subjects shall be provided with an easy way to withdraw their consent to the deposit of cookies at any time.

Electronic communications marketing

Describe any rules on marketing by email, fax or telephone.

Sending unsolicited marketing messages is prohibited without the prior consent of the recipient. Such consent of the data subject cannot derive from:

  • a pre-ticked box; or
  • general acceptance of terms and conditions.

Under the following conditions, the prior consent of the data subject is not required to address unsolicited marketing messages:

  • when the information of the data subject has been collected on the occasion of a purchase in accordance with the applicable data protection rules;
  • the marketing messages concern products or services similar to those purchased by the data subject; and
  • the data subject is provided with an easy way to opt out of receiving marketing messages when the data is collected and with each marketing message.

In a B2B relationship, the prior consent of the recipient is not required provided that:

  • the recipient has been informed that his or her email address would be used to address marketing messages;
  • the recipient has the possibility to oppose the use of his or her email address for the purpose of direct marketing at the time of its collection and with each message; and
  • the marketing messages must be in relation to the recipient’s profession.

Direct marketing by regular mail or telephone is not subject to the prior consent of the recipient, but the recipient has the possibility to object to it by signing up to an opt-out list. In France, this list is called Bloctel, which is the governmental opt-out list for telephone marketing.

Cloud services

Describe any rules or regulator guidance on the use of cloud computing services.

There is no specific provision applicable to cloud computing in the LIL or the GDPR. The CNIL issued guidelines addressed to companies contemplating subscription to cloud computing services dated 25 June 2012. These guidelines contain seven recommendations by the CNIL that should be taken into account by data controllers when assessing the opportunity to migrate to cloud services, as well as a template clause to be inserted into agreements with cloud computing services providers.

The recommendations are to:

  • establish a precise mapping of the data and processing that will be migrating to the cloud and the related risks;
  • define technical and legal security requirements adapted to the categories of data and processing;
  • carry out a risk analysis to identify the security measures to be implemented to preserve the essential interests of the company;
  • identify the type of cloud services and data hosting appropriate with respect to all data processing;
  • select cloud service providers that provide adequate security and confidentiality guarantees;
  • review and adapt the internal security policies of the company; and
  • carry out regular assessments of the cloud services.

Update and trends

Key developments of the past year

Are there any emerging trends or hot topics in international data protection in your jurisdiction?

Key developments of the past year46 Are there any emerging trends or hot topics in international data protection in your jurisdiction?

Since the implementation of the GDPR one year ago, many national data protection authorities have reported a sharp increase in the number of complaints. In France, the CNIL recently observed a 32 per cent increase in the number of complaints received in 2018, largely attributable to the RGPD. Indeed, the CNIL has received more than 11,900 complaints since May 2018. During the first nine months of the RGPD, the EDPB reported 144,376 complaints.

In the first major example, on 25 and 28 May 2018, the CNIL received group complaints from the associations None Of Your Business (NOYB) and La Quadrature du Net (LQDN). LQDN was mandated by 10,000 people to refer the matter to the CNIL. In the two complaints, the associations reproach Google for not having a valid legal basis to process the personal data of the users of its services, particularly for ads personalisation purposes.

As a result, Google has been fined €50 million by the CNIL for not properly informing to its users how data is collected across its services to present personalised advertisements. The CNIL noticed that the information on the data-processing activities provided to users was neither easily accessible to users nor always clear or comprehensive.

The CNIL also observed that Google doesn’t properly obtain users’ consent to target them with personalised ads. Essential information required to sufficiently inform data subjects of storage purposes, periods or categories of personal data used for ads personalisation is diluted in several documents and does not enable the user to be aware of their extent, with a several clicks required to access the full information. Therefore, the CNIL underlined that the user gives his or her consent in full, for all the processing operations purposes carried out by Google based on this consent (ads personalisation, speech recognition, etc). However, the GDPR provides that the consent is ‘specific’ only if it is given distinctly for each purpose.

Finally, we can also underlines that the CNIL is more likely to make public the sanctions that it imposes on the PII controller or processor.

The overwhelming fear of ‘digital death’

The overwhelming fear of ‘digital death’

The overwhelming fear of ‘digital death’

Click here to view original web page at The overwhelming fear of ‘digital death’

The internet is changing how we converse with the dead. While the bereaved have traditionally visited graves or burial sites to talk to deceased loved ones, some are now turning to digital spaces to continue their bonds with the dead.

Research has highlighted how some bereaved people use Facebook to talk to the dead, keeping them updated with family news by logging on and leaving messages with some expectation that their dead loved ones may read them.

Death-tech companies such as Eternime and LifeNaut now even offer ways for the dead to be digitally resurrected using artificial intelligence.

The dead are no longer hidden away, they are carried with us on our digital devices in the form of voicemails, WhatsApp messages, texts and photographs. But these social networks and messaging services were designed for people to stay in touch with the living.

Using them to talk with the dead is blurring the distinction between the social lives of the living and those of the “socially active dead”.

Taking comfort

As a sociologist I became interested in how everyday memories and messages received from loved ones take on new significance following the death of the sender. My research explores how these treasured digital possessions, available at a keystroke on everyday portable devices, affect how people grieve.

I interviewed 15 people who had inherited online digital memories and messages and found many took real comfort from the messages stored on social networking sites.

It wasn’t the profound or purposeful WhatsApp and text messages the people I interviewed found most comforting, but rather the every day messages – such as “I’m ringing the doorbell”, “speak later” and “I’m with you in spirit”.

One woman, Sarah* explained how she found comfort in the LinkedIn page of her dead aunt. Her aunt didn’t upload a photograph on the professional networking site, so there is standard grey outline instead, and the woman explained she found this “little shadow thing” poignant.

Issues around access and retrieval were of paramount importance to the bereaved people I spoke to – and any sense of comfort was always inextricably linked to securing and having control of the messages.

Many of my participants explained their fear of losing the data by either the obsolescence of the hardware or software. One woman, Emma*, described how she felt following the death of her best friend, when his Facebook page disappeared from the platform:

“Then one day I hadn’t visited his page for a while, and when I searched for it, it was gone. My heart dropped. I felt panicky, I went to pictures other people had posted of him, thinking I could follow the tags to find him, but they were gone. The pictures were just his face, with no way to get to him. It was like losing him all over again.”

The fear of second loss

Amy* whose sister had died, had taken great comfort in reading old messages and listening to answerphone messages her sister had left her. Amy told me how she’d purchased software to take the voicemails off her mobile and transferred onto her laptop:

“I bought some software … because I just couldn’t get the audio messages. I couldn’t save them. I wanted them on my laptop … they are my most treasured thing.”

I bought some software … because I just couldn’t get the audio messages. I couldn’t save them. I wanted them on my laptop … they are my most treasured thing.

Some people told me they were reluctant to upgrade their telephones, deeply concerned that the precious messages would be lost if they did.

Pam*, whose daughter had died, explained that she hadn’t upgraded her telephone for five years. She said losing the text messages and voicemails would be like “losing her again”.

There are some third-party tools that can assist with the transfer of these precious messages, but still many of those I interviewed told me they were reluctant to use them in case the messages are lost in the process. Pam explained that by transferring the data she felt that she would somehow lose part of the “essence” of her daughter.

This fear of second loss is a new phenomenon for those grieving in our digital society. While images of the dead stowed away in boxes of photos in attics may well fade or perish over time, they don’t form part of people’s everyday lives in such a socially active way as digital memories do.

The digital data of the dead is far more than code – it contains the digital souls of the deceased. While, for some, the internet provides comfort by enabling a continuing relationship with the departed, for others it is causing a new anxiety – the fear of second loss.

* Names have been changed throughout the piece to protect the anonymity of interviewees.

This article is republished from The Conversation under a Creative Commons license. Read the original article.

Images

What happens to our online identities when we die?

What happens to our online identities when we die?

What happens to our online identities when we die?

Click here to view original web page at What happens to our online identities when we die?

Hayley Atwell in the Black Mirror episode Be Right Back.

Esther Earl never meant to tweet after she died. On 25 August 2010, the 16-year-old internet vlogger died after a four-year battle with thyroid cancer. In her early teens, Esther had gained a loyal following online, where she posted about her love of Harry Potter, and her illness. Then, on 18 February 2011 – six months after her death – Esther posted a message on her Twitter account, @crazycrayon.

“It’s currently Friday, January 14 of the year 2010. just wanted to say: I seriously hope that I’m alive when this posts,” she wrote, adding an emoji of a smiling face in sunglasses. Her mother, Lori Earl from Massachusetts, tells me Esther’s online friends were “freaked out” by the tweet.

“I’d say they found her tweet jarring because it was unexpected,” she says. Earl doesn’t know which service her daughter used to schedule the tweet a year in advance, but believes it was intended for herself, not for loved ones after her death. “She hoped she would receive her own messages … [it showed] her hopes and longings to still be living, to hold on to life.”

Although Esther did not intend her tweet to be a posthumous message for her family, a host of services now encourage people to plan their online afterlives. Want to post on social media and communicate with your friends after death? There are lots of apps for that! Replika and Eternime are artificially intelligent chatbots that can imitate your speech for loved ones after you die; GoneNotGone enables you to send emails from the grave; and DeadSocial’s “goodbye tool” allows you to “tell your friends and family that you have died”. In season two, episode one of Black Mirror, a young woman recreates her dead boyfriend as an artificial intelligence – what was once the subject of a dystopian 44-minute fantasy is nearing reality.

Esther Earl at home in 2010 … before she died, she arranged for emails to be sent to her imagined future self.
Esther Earl at home in 2010 … before she died, she arranged for emails to be sent to her imagined future self. Photograph: Boston Globe via Getty Images

But although Charlie Brooker portrayed the digital afterlife as something twisted, in reality online legacies can be comforting for the bereaved. Esther Earl used a service called FutureMe to send emails to herself, stating that her parents should read them if she died. Three months after Esther’s death, her mother received one of these emails. “They were seismically powerful,” she says. “That letter made us weep, but also brought us great comfort – I think because of its intentionality, the fact that she was thinking about her future, the clarity with which she accepted who she was and who she hoped to become.”

Because of the power of Esther’s messages, Earl knows that if she were dying, she would also schedule emails for her husband and children. “I think I would be very clear about how many messages I had written and when to expect them,” she adds, noting they could cause anxiety for relatives and friends otherwise.

Yet while the terminally ill ponder their digital legacies, the majority of us do not. In November 2018, a YouGov survey found that only 7% of people want their social media accounts to remain online after they die, yet it is estimated that by 2100, there could be 4.9bn dead users on Facebook alone. Planning your digital death is not really about scheduling status updates for loved ones or building an AI avatar. In practice, it is a series of unglamorous decisions about deleting your Facebook, Twitter and Netflix accounts; protecting your email against hackers; bestowing your music library to your friends; allowing your family to download photos from your cloud; and ensuring that your online secrets remain hidden in their digital alcoves.

In Be Right Back, a young woman recreates her dead boyfriend as an artificial intelligence.
In Be Right Back, a young woman recreates her dead boyfriend as an artificial intelligence. Photograph: Channel 4

“We should think really carefully about anything we’re entrusting or storing on any digital platform,” says Dr Elaine Kasket, a psychologist and author of All the Ghosts in the Machine: Illusions of Immortality in the Digital Age. “If our digital stuff were like our material stuff, we would all look like extreme hoarders.” Kasket says it is naive to assume that our online lives die with us. In practice, your hoard of digital data can cause endless complications for loved ones, particularly when they don’t have access to your passwords.

“I cursed my father every step of the way,” says Richard, a 34-year-old engineer from Ontario who was made executor of his father’s estate four years ago. Although Richard’s father left him a list of passwords, not one remained valid by the time of his death. Richard couldn’t access his father’s online government accounts, his email (to inform his contacts about the funeral), or even log on to his computer. For privacy reasons, Microsoft refused to help Richard access his father’s computer. “Because of that experience I will never call Microsoft again,” he says.

Our devices capture so much stuff, we don’t think about the consequences for when we’re not here

Compare this with the experience of Jan-Ole Lincke, a 24-year-old pharmaceutical worker from Hamburg whose father left up-to-date passwords behind on a sheet of paper when he died two years ago. “Getting access was thankfully very easy,” says Lincke, who was able to download pictures from his father’s Google profile, shut down his email to prevent hacking, and delete credit card details from his Amazon account. “It definitely made me think about my own [digital legacy],” says Lincke, who has now written his passwords down.

Yet despite growing awareness about the data we leave behind, very few of us are doing anything about it. In 2013, a Brighton-based company called Cirrus Legacy made headlines after it began allowing people to securely leave behind passwords for a nominated loved one. Yet the Cirrus website is now defunct, and the Guardian was unable to reach its founder for comment. Clarkson Wright & Jakes Solicitors, a Kent-based law firm that offered the Cirrus service to its clients, says the option was never popular.

“We’ve been aware for quite a period now that the big issue for the next generation is digital footprints,” says Jeremy Wilson, head of the wills and estates team at CWJ. “Cirrus made sense and ticked a lot of boxes but, to be honest, not one client has taken us up on it.”

Wilson also notes that people don’t know about the laws surrounding digital assets such as the music, movies and games they have downloaded. While many of us assume we own our iTunes library or collection of PlayStation games, in fact, most digital downloads are only licensed to us, and this licence ends when we die.

What we want to do and what the law allows us to do with our digital legacy can therefore be very different things. Yet at present it is not the law that dominates our decisions about digital death. “Regulation is always really slow to keep up with technology,” says Kasket. “That means that platforms and corporations like Facebook end up writing the rules.”

Andrew Scott stars in the new Black Mirror episode Smithereens, which explores our digital dependency.
Andrew Scott stars in the new Black Mirror episode Smithereens, which explores our digital dependency. Photograph: Netflix / Black Mirror

In 2012, a 15-year-old German girl died after being hit by a subway train in Berlin. Although the girl had given her parents her online passwords, they were unable to access her Facebook account because it had been “memorialised” by the social network. Since October 2009, Facebook has allowed profiles to be transformed into “memorial pages” that exist in perpetuity. No one can then log into the account or update it, and it remains frozen as a place for loved ones to share their grief.

The girl’s parents sued Facebook for access to her account – they hoped to use it to determine whether her death was suicide. They originally lost the case, although a German court later granted the parents permission to get into her account, six years after her death.

“I find it concerning that any big tech company that hasn’t really shown itself to be the most honest, transparent or ethical organisation is writing the rulebook for how we should grieve, and making moral judgments about who should or shouldn’t have access to sensitive personal data,” says Kasket. The author is concerned with how Facebook uses the data of the dead for profit, arguing that living users keep their Facebook accounts because they don’t want to be “locked out of the cemetery” and lose access to relatives’ memorialised pages. As a psychologist, she is also concerned that Facebook is dictating our grief.

“Facebook created memorial profiles to prevent what they called ‘pain points’, like getting birthday reminders for a deceased person,” she says. “But one of the mothers I spoke to for my book was upset when her daughter’s profile was memorialised and she stopped getting these reminders. She was like, ‘This is my daughter, I gave birth to her, it’s still her birthday’.”

While Facebook users now have the option to appoint a “legacy contact” who can manage or delete their profile after death, Kasket is concerned that there are very few personalisation options when it comes to things like birthday reminders, or whether strangers can post on your wall. “The individuality and the idiosyncrasy of grief will flummox Facebook every time in its attempts to find a one-size-fits-all solution,” she says.

Pain points … should we allow loved ones to curate our legacy, or create ‘memorial pages’?
Pain points … should we allow loved ones to curate our legacy, or create ‘memorial pages’? Photograph: Yui Mok/PA

Matthew Helm, a 27-year-old technical analyst from Minnesota, says his mother’s Facebook profile compounded his grief after she died four years ago. “The first year was the most difficult,” says Helm, who felt some relatives posted about their grief on his mother’s wall in order to get attention. “In the beginning I definitely wished I could just wipe it all.” Helm hoped to delete the profile but was unable to access his mother’s account. He did not ask the tech giant to delete the profile because he didn’t want to give it his mother’s death certificate.

Conversely, Stephanie Nimmo, a 50-year-old writer from Wimbledon, embraced the chance to become her husband’s legacy contact after he died of bowel cancer in December 2015. “My husband and I shared a lot of information on Facebook. It almost became a bit of an online diary,” she says. “I didn’t want to lose that.” She is pleased people continue to post on her husband’s wall, and enjoys tagging him in posts about their children’s achievements. “I’m not being maudlin or creating a shrine, just acknowledging that their dad lived and he played a role in their lives,” she explains.

Nimmo is now passionate about encouraging people to plan their digital legacies. Her husband also left her passwords for his Reddit, Twitter, Google and online banking accounts. He also deleted Facebook messages he didn’t want his wife to see. “Even in a marriage there are certain things you wouldn’t want your other half to see because it’s private,” says Nimmo. “It worries me a little that if something happened to me, there are things I wouldn’t want my kids to see.”

When it comes to the choice between allowing relatives access to your accounts or letting a social media corporation use your data indefinitely after your death, privacy is a fundamental issue. Although the former makes us sweat, the latter is arguably more dystopian. Dr Edinja Harbinja is a law lecturer at the University of Hertfordshire, who argues that we should all legally be entitled to postmortem privacy.

If we don’t start making decisions about our digital deaths, then someone else will be making them for us

“The deceased should have the right to control what happens to their personal data and online identities when they die,” she says, explaining that the Data Protection Act 2018 defines “personal data” as relating only to living people. Harbinja says this is problematic because rules such as the EU’s General Data Protection Regulation don’t apply to the dead, and because there are no provisions that allow us to pass on our online data in wills. “There can be many issues because we don’t know what would happen if someone is a legacy contact on Facebook, but the next of kin want access.” For example, if you decide you want your friend to delete your Facebook pictures after you die, your husband could legally challenge this. “There could be potential court cases.”

Kasket says people “don’t realise how much preparation they need to do in order to make plans that are actually able to be carried out”. It is clear that if we don’t start making decisions about our digital deaths, then someone else will be making them for us. “What one person craves is what another person is horrified about,” says Kasket.

How close are we to a Black Mirror-style digital afterlife?

Read more

Esther Earl continued to tweet for another year after her death. Automated posts from the music website Last.fm updated her followers about the music she enjoyed. There is no way to predict the problems we will leave online when we die; Lori Earl would never have thought of revoking Last.fm’s permissions to post on her daughter’s page before she died. “We would have turned off the posts if we had been able to,” she says.

Kasket says “the fundamental message” is to think about how much you store digitally. “Our devices, without us even having to try, capture so much stuff,” she says. “We don’t think about the consequences for when we’re not here any more.”

• Black Mirror season 5 launches on Netflix on 5 June.

Images

The Ultimate Guide to Digital Death.

The Ultimate Guide to Digital Death.

The Ultimate Guide to Digital Death.

Click here to view original web page at The Ultimate Guide to Digital Death.

The Ultimate Guide to Digital Death.

The grief over losing someone we love is terrible. Many people deal with it in a different way, but the emptiness inside is all the same for everyone. There are no words that can make it better and there are no actions that could bring that person back. The hard part is accepting that we would never see them again and would never talk to them again. To deal with the lost some people decide to keep everything the way used to be and keep all belongings of that person, others prefer to get rid of everything. But have you asked the question what happens with all their social media accounts? Do we have the rights to deal with it in the same way? What can go wrong if we don’t take actions on that part?

*What is the law saying about your digital properties after you die?

This is a very new concept and the procedure is not very well established in many places. It’s different from country to country and state to state. Most countries do not have a well-written path of how to deal with the matter and will grant access to anyone if you do not have a direct instruction and written legal permission. The law for protecting personal information is the main reason for granting access. In many countries and states if you do not have the permission of that person before their death you would have to get a court order to access their accounts. Even if you do know their passwords you are technically breaking the law, but no one really gets in trouble for that so far.

What happens with your social media when you die?

* YouTube Channel:

If nobody can get into the account, then the account basically freezes in place. YouTube keeps paying absence money until the videos stop profiting unless the bank account is closed.

How to get access to someone’s else YouTube account:

  1. Your full name and contact information, including a verifiable email address.
  2. The YouTube account name of the individual who passed away.
  3. A copy of the death certificate of the deceased.
  4. A copy of the document that gives you Power of Attorney over the YouTube account.
  5. If you are the parent of the individual, please send us a copy of the Birth Certificate if the YouTube account owner was under the age of 18. In this case, Power of Attorney is not required.

*Facebook account

The society that lives in social media will also moan in social media. Facebook is one of the first social media that can provide this option. Profiles that aren’t removed or memorialized remain active on Facebook forever. That means the profile could continue to show up in searches, people-you-may-know suggestions, ads, and those all-too-frequent birthday reminders. If friends and family don’t want to be reminded constantly, the page should be locked down or removed entirely.

Options if someone did not plan in advance?

Facebook allows an active account to be turned into a memorial account by an immediate family member with proof of death. When a Facebook account is turned into a memorial account, friends can post to the deceased’s page and tag them in photos. You can also deactivate a deceased person’s account instead of memorializing it.

How to:

  1. Memorialized Accounts:

Fill out the Memorialization Request here.

Once someone’s profile has been designated as a memorial, the friends and family will be allowed to see it, but it will not show up in searches and notifications. Facebook is very clear that once a page is memorialized, there is no going back. The page and all its content cannot be altered in any way — except by a designated legacy contact.

  1. Permanently Deleted Accounts:

What can you do in advance:

Facebook allows you to choose a Legacy Contact that will be able to access your account after death. Here is how to set up yours:

  1. Log into your Facebook account.
  2. Click the down arrow at the top right of the window, and select Settings.
  3. In the left-hand menu, click on Security.
  4. In the Security Settings list, click on the Legacy Contact.
  5. Type in your Facebook friend’s name to add the legacy contact.

*Instagram account

Instagram also allows for either memorialization or deactivation of a deceased user’s account. Instagram requires proof of relationship or authority that you are a lawful representative of the deceased person as well as the deceased person’s death certificate.

How to:

  1. Memorializing Instagram accounts:

To memorialize an Instagram account you would have to contact Instagram and show a proof of death, such as a link to an obituary or news article, to memorialize an account.

Here are some of the key features of memorialized accounts:

  • Instagram doesn’t allow anyone to log into a memorialized account.
  • The profile of a memorialized account doesn’t appear differently from an account that hasn’t been memorialized.
  • Memorialized accounts can’t be changed in any way. This includes changes to likes, followers, tags, posts, and comments.
  • Posts the deceased person shared, including photos and videos, stay on Instagram and are visible to the audience they were shared with.
  • Memorialized accounts don’t appear in public spaces, like people’s
  1. Removing Instagram Accounts:

Removing link

* Twitter account

While there might not be an option to memorialize a Twitter account, family members or authorized individuals can request to have a deceased person’s account deactivated.

Requires a death certificate and user ID of deceased as well as your user ID for deactivation.

What friends & family can do?:

  1. To Remove an Account: Fill out the Privacy Form here.
  2. Select I want to request the deactivation of a deceased user’s account.
  3. Fill out the Report details form, and click Submit. Twitter will then send a confirmation email with instructions to complete the request.

* LinkedIn account

LinkedIn has several requirements for deactivation including the deceased’s name, your relationship to them, the name of the company the deceased last worked for, a link to the deceased’s profile, proof of death and their current email address.

* Snapchat account

Not possible to delete without having to log in

* Pinterest account

Deactivation requires a death certificate, link to their Pinterest page and proof of your relationship to the person.

* Emails

1. Yahoo

The family can request that Yahoo deletes the account.

2. Gmail

  • The family can request that Google deletes the account.
  • You can be prepared by using Google’s inactive account manager

Why should you be prepared?

  • It would make it easy for your family and friends
  • Your family and friends won’t lose any potential income from online platforms
  • Protect your digital legacy from an identity thief
  • Protect your family and friends from potential online attack and unwanted comments

How to avoid becoming a digital ghost after dead:

With social media taking over our personal lives more and more every day, the companies providing data-management services expand in the last few years.

A cottage industry of online data-management companies has begun selling services that claim to transfer your digital assets to your beneficiaries. One such service is offered by SecureSafe. But there is still potential conflict with federal laws and users agreements in different countries.

Applications like If I die allows you to pre-record a video that will be published on your social media accounts after your death.

  • If you have a will or funeral plan, include your social media assets there too.
  • Make a list of all accounts and passwords someone might need (LastPass and 1Password)
  • Name a person who would become your Digital Executor

Information to Include in a Power of Attorney or Will

  1. List of all account numbers, banks, and institutions that are managed online.
  2. List of all credit card accounts managed online including the name of the card issuer and card number.
  3. List of cloud photo storage software/website and password.
  4. List of email, internet and messaging programs used and their passwords.
  5. List of monthly subscriptions and their passwords, i.e. Amazon Prime, Netflix, etc.
  6. List of social media accounts and passwords.
  7. Master password for your password saver software or list of current passwords.
  8. Passwords for audiobook software if separate from phone operating system or another online account such as Amazon.
  9. Passwords for music software such as Amazon Music, iTunes or Spotify.
  10. Phone unlock code and operating system password.
  11. URLs of online journals or individual blog articles.

Here is an example of good online organizer and another social media death planer

Planning your own death would never be fun but if you do so, you should start considering including your social media accounts. We live in a time when is almost creepy not to have social media accounts and therefore we should try to protect our loved ones in any way we can.